Moving forward slowly…

Hello friends!

I hope you are all doing well, here everything is fine, progress is slow but things are moving forward and in the meantime I’ve finished the Little Book of Cosmic Maps 🙂

Back & Front Cover

For me doodling is a really good way to pass the time..

Spread 1

Spread 2

Spread 3

Spread 4

As you can see I’ve had a bit of time on my hands recently…

I had the PET scan last week, it was OK just a bit of a hassle, it took 2 hours to get to the hospital then I had to wait an hour before I was called in, they gave me the injection of radioactive glucose and I was left on my own for another hour before I was called in for the scan.  It took about 35 minutes and then we were free to go.

I was told that I would be slightly radioactive for about 6 hours and was to avoid contact with pregnant women or children.  However I was still allowed to travel home on public transport (another couple of hours).  I didn’t stroke my two cats until the next day, but it didn’t seem to bother them.

Yesterday we went for another appointment with the consultant haematologist and she told me that the results of two of the three tests on my bone marrow are back and neither of them found the cancer in my bones.  The final test is more vigorous and the results of that are not back yet.  But so far it’s looking good.

The PET scan didn’t find any more tumours in my body (phew!) but although the tumour in my mouth has shrunk the scan found residual lesions in my jaw (I’m not sure but I think that means scaring).  So although the tumour is almost gone I still have the disease in my blood but it’s in it’s early stages and there’s a good chance that with treatment I can fully recover. So the plan (worked out by this mysterious team of invisible experts) is for me to have 6 rounds of chemo and then radiotherapy on my jaw.  It feels like I’ve been telling people for over a month now that I’ll be starting chemo ‘next week’ and that hasn’t happened but it now looks like it will start during the week commencing 3 November.  In the meantime I have to sign the consent form and have an ECG just to make sure my heart is OK. Tomorrow I have an appointment with the nurse who is going to tell me all about what’s going to happen and on Saturday I have to visit my local doctor’s surgery to have a flu jab because they want that done before the chemo starts.

Having chemo-therapy is not something I am going into lightly and in truth I’m not looking forward to it but …. ‘needs must’ as they say, I’m just not sure what to expect.

I’ve been feeling so well for the past two weeks and enjoying not being at work but tomorrow I am going to go back to work because I reckon if I take too much time off I won’t want to go back at all!  Anyway it’s pointless, and unfair on work colleagues, to have sick leave when I am not if feeling sick.  Fortunately I have good employers, I’ve worked for them for a very long time and, up until now, I have a pretty good attendance record.  I think they will be flexible around my hospital appointments and will be OK with me having time off if the chemo (or the cancer) makes me unwell over the next few months.

So all in all I am doing well at the moment, and I am staying positive and upbeat.  I hope all is good with you where ever you are in the world.

Big love

AJ 🙂

© Janette Gregson and ajsartjournal, 2014 unless otherwise stated. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Janette Gregson and ajsartjournal with appropriate and specific direction to the original content.

 

 

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Learning the art of patience.

Patience is not simply the ability to wait – it’s how we behave while we’re waiting.

Cosmic mapsHello friends

I hope all is good with you.

Today didn’t go exactly as I had prepared for.  I had an appointment with a consultant at the hospital and I was expecting to be told the specifics of my cancer diagnosis and, more importantly for me, the treatment plan, but it didn’t work out like that.

The results of the CT scan I had on Friday were not available and the blood samples I had taken last week now have to be sent to another hospital for more rigorous testing. This means that my case will not be discussed at the Multi-Disciplinary team meeting tomorrow so no treatment plan will be drawn up this week.  IF everything can be sorted out by Friday of this week then I can be discussed as the MDT meeting next Tuesday so I now have an appointment to see the consultant again on Wednesday 7 October.

I have to be honest I felt a bit let down.  I do understand that the treatment has to be specific to the type and stage of my cancer and a few more days delay won’t affect the outcome, but I, of course, am anxious to get this show on the road and to start fighting…

Still there is good news – I am still feeling well and the tumour doesn’t feel quite so uncomfortable now.  On top of that over the past few days I have become an expert in making fruit and veg smoothies and in cooking up batches of soup.  This probably doesn’t sound a big deal to you but it’s a whole new world to me.

Anyway it’s all out of my hands so I am just going to have to be patient for a while longer.

The image above is from a little book I have been working on that I am calling The Little Book of Cosmic Maps.

See you soon

Big love

AJ 🙂

 

 

© Janette Gregson and ajsartjournal, 2014 unless otherwise stated. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Janette Gregson and ajsartjournal with appropriate and specific direction to the original content.