I’ve been away from my blog again for a while so I hope you are all doing well. What a lot has happened since I was last here!
During the last couple of weeks of radiotherapy treatment I was getting quite tired and often went to bed as soon as I got home, apart from that I didn’t feel too bad although the inside of mouth was sore a lot of the time. The final treatment was on 29 April. I thought I would feel euphoric at reaching the end of treatment, but that couldn’t be further from the truth. After the treatment ended the sores in my mouth became worse, my tongue felt like a piece of old carpet, I lost all sense of taste and eating was very difficult. For a few days I suffered from what I assume was depression. I was still functioning and being creative but I became even more introverted than usual and very emotional. Thankfully things are now beginning to get better, my mouth is no longer sore and my taste is gradually coming back (I had no idea how difficult it would be to eat when there was no taste). I’ve got a red mark on my face where the beams targeted the mandible in my jaw bone and I look like I’ve just been slapped, but that doesn’t hurt, it just looks a bit odd.
I do have this strange sense of being left in limbo though. The last 6 months have been really difficult, but I have no idea if the treatment has worked or not. I don’t go back to Southampton hospital until 8 June and I’m not sure what they will be able to tell me then as I have no scan or blood test scheduled before then. The oncologist I saw at Southampton did tell me that after that appointment in June all subsequent appointments would be at my local hospital. I was horrified and told him I didn’t want to go back there as I was so unhappy with the way I was treated. We are going to talk about my concerns when I see him in June.
At the end of my treatment I was given the mask to bring home, I also asked if I could have the ‘dreaded’ gob-stopper, they thought that was an unusual request but gave it to me anyway along with the piece of thick pink wax which was helping to protect my skin.
I think it needs to be turned into a piece of art eventually. I’m not sure what I could do with the gob-stopper and the wax so I might just hide them inside so I will know they are there even if no-one else does.
Once I start to feel better physically I’m sure my low mood will improve as I generally work on the principle that if I feel OK then I am OK.
The death of a friend
The friend we visited at the Hospice on 29 March sadly passed away on 15 April he was at his sister’s house and surrounded by his family when he died. We attended his funeral on 27 April (2 days before I finished the radiotherapy treatment). We were not very close friends and we hadn’t seen him for a few years before we visited him at the hospice, but he was part of our history. Back in the 1980s he played in the same band as my husband. He was an absolute giant of a man with a cutting sense of humour, but he was always lovely to me and I liked him a lot.
I think his death really brought home to me that people don’t always beat cancer and that probably has contributed to my anxiety and low mood at the moment.
Rest in Peace Dave “Cheesybits” Bowater and thanks for some great memories.
The earthquake in Nepal
On 25 April there was a massive earthquake in Nepal, a poor country where life is normally hard for the people. The devastation caused by this earthquake has left 8,413 people dead, 17,576 injured, 260 still missing and many thousands of people homeless.
We spent time in Nepal in the early 1970s, it is a stunningly beautiful country and the people are welcoming and generous. It breaks my heart that the people are suffering with this devastation now and I’m giving what I can to the relief fund.
The building in the image is one of the historic buildings in Durbar Square Kathmandu now destroyed. That is sad but right now it’s the people who need our help.
On 2 May a royal baby was born and apparently the ‘whole’ country celebrated. I’m not sure I did celebrate though, I mean I am pleased for them as a family but it’s just another baby and I’m sure there were lots born that day throughout the UK.
Then yesterday we had an election, perhaps you heard about it? I’m just too pissed off to talk about it really. Things are about to get even tougher for the poor and disadvantaged of this country and it does not make me proud to be British today.
Right, that’s got all that off my chest so now for something cheerful and positive 🙂
I’ve booked our accommodation and the ferry for our holiday at the end of May and I’m just looking forward to getting away and having a break for a few days before I start my return to work. I won’t even mind if it rains for the whole week because I’m just going to be chilling out.
The page above is a page from my Tikis and Totems journal which I did last week, here’s what it looked like with just the collage:
I cheated with this one and I downloaded a totem pole from the internet, it was a colouring sheet for children to colour, I cut all the different parts from collage instead of colouring it in and then did loads of penwork over the top.
That’s all for now folks, sorry this was a long one.
Stay well and happy.
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