A Give-Away and an Update – the journey continues…

Live, Love, Laugh

Hello friends

The page above is the front cover of my 16-page Teesha Moore inspired journal.

An apology

First off an apology, I am sorry but I omitted something from my last post.  A little while ago I was contacted by Jenny of This Rosy Life blog asking if I’d like to participate in a blog hop.  I really was not up to it at the time so I declined the invitation, but nevertheless Jenny still mentioned me and my blog in her post  here.   Jenny is an amazing collage artist and I am really impressed because she uses lots of flower images in her work, I’ve always found flowers to be quite difficult to use in collage.  If you have a few minutes to spare why not pop over to Jenny’s blog, have a look at some cool art and say Hi to her?  This Rosy Life.

The Give Away

I promised recently that once I had finished the chemo therapy I would have a ‘Give Away’ to celebrate that milestone.  I have made up 3 packs of art supplies that I no longer want or need.  All three are similar and look something like this:

Give Away Pack

There are collage sheets, papers, some stamps, embellishments, bits of maps and printed papers in each pack.  It looks like there is money too, but the £20 and £50 notes are actually printed on serviettes and are NOT genuine currency 🙂

Each pack will also include one of the small journals I made from a pile of scrap papers:

New Journals

If you would like to win one of these packs please leave a comment below and I will pick three random winners on Sunday 22 March.  It doesn’t matter where you live as I’m prepared to post to anywhere worldwide and I’ll mark the package as a gift with low monetary value so you shouldn’t have to pay any import tax if you receive one.

Update on my health and the continuing journey

I had the last round of chemo on 24 February *Happy Dance*, I’m so glad that part is over. I’ve been feeling pretty good since then, so good in fact that I thought perhaps that was the only treatment I needed and I even began to think about returning to work next month.

I’ve been spending a lot of time still de-cluttering my room, I’ve made several trips to the local municipal tip and donated loads of stuff to a local charity shop.  Making up the scrap books from the 10 years worth of local magazines took me about 2 weeks and it was a really boring task, but I got there eventually and now I just have a neat little pile of scrap books instead of a huge plastic box full of magazines. The more I’ve got rid of stuff the easier it has become and it no longer feels quite so oppressive in my room.  I still reckon I could get rid of at least 50% of the stuff that’s left but for now I’m taking a break from de-cluttering and concentrating more on creating art.

Because I thought I’d be going back to work soon I collaged one of the small journals I made.  I needed something small to fit into my handbag and carry around with me with a few pens so I can journal whenever I get a few spare moments.  That will still come in useful but I won’t be needing it as soon as I thought I would as it doesn’t look like I’ll be going back to work any time soon.

Yesterday I had an appointment to see the oncologist at Southampton Hospital.  T and I set off at 8am and it took a couple of hours to get there.  I drove over to Cowes parked the car and took the ferry to Southampton then got a free mini bus to the hospital. It took us about half an hour to find the right department in the vast hospital and then we had a short wait before we got to meet a very lovely female doctor who asked me lots of questions about what had happened to me and seemed genuinely interested in me and my condition. She said “We recommend that you now have radiotherapy” and explained why they thought this was necessary.  Not only did she explain things, she checked that we had understood her explanation and encouraged us to ask questions.  If she was able to answer the questions she did and if she was unable to give us answers she explained why there are certain things they don’t know about my specific cancer but why they think the radiotherapy is necessary.  She explained all about what will happen next and during the treatment and what the likely side effects will be, including mouth ulcers, sore skin and the possibility that the saliva glands on that side could be damaged by the treatment and how that will be dealt with.

Next Monday I will have to go over again for another CT scan and to have the face mask made up.  The mask is necessary to ensure that they can target the area of my jaw bone while causing as little damage as possible to any other area of my face and mouth. The mask will also mean that I am unable to move my head and will hold my mouth open during treatment.  About two weeks after that the radiotherapy will commence.

I have to say it doesn’t sound like it’s going to be much fun but the treatment should be fairly quick.  I’ll have the treatment every (week) day for three weeks, the actual ‘zapping’ is only for a few minutes but the fixing of the mask and lining everything up takes a bit of time so I’m probably looking at about 20 minutes or so each day, plus what ever time I have to wait around at the hospital (for some reason there is always an element of ‘waiting around’ at hospitals) and about 4 hours travel every day.  I think I am going to be very tired at the end of this treatment, but hopefully by then I will also be in a good position to get on with my life and think about returning to work.  Most of the side effects should start to improve soon after treatment finishes.

So after this long chat with the lovely doctor we both read and then I signed the consent form and then she said, “Now I’m going to get Dr B (the boss) and he is going to come and talk to you.  During your treatment here we will both be looking after you and you will be seeing one of us at least once a week during the three weeks and we will be checking on your progress”.

Dr B must have been busy because it took a while before she came back with him.  He too was was very friendly and warm, explained things to us, checked we understood and encouraged us to ask any questions.  I told him that we were not used to being encouraged to ask questions and in fact we had both been made to feel like we were being awkward every time we asked the consultants at the local hospital any questions.  It was just so refreshing to be treated like adults for a change.  So we did ask questions and he gave us full and frank answers, then eventually I plucked up the courage to ask the one questions I really wanted the answer to, I said, “There is something else I’d like to ask you and I don’t know how you will react to this because I’ve asked two different consultants at my local hospital the same question and both times I’ve been made to feel that it is a totally unreasonable and ridiculous question to ask, but anyway here goes.  Is it possible for me to see the scans I’ve had taken and be given an explanation of what was found”?

Both doctors immediately said “Of course you can see your scans, you can see them right now, it’s not an unreasonable question, it’s something we would expect you to ask and we always show patients this information”.  Within a few minutes he called up the information on a computer screen. First of all he showed me the CT scan I had taken at the local hospital when I was first diagnosed and still had the tumour in my mouth.  The tumour was really obvious in the image.  Next he showed me the PET scan I had taken at Portsmouth hospital a few weeks later by which time the tumour had disappeared and he said “So we can see there is no tumour evident in this scan however when we get right into your jaw bone these bright areas show that there are still some cancer cells active and as you can also see here there are some large voids in the jaw bone”.  I was told that once the cancer is eliminated there is a good chance that the bone will grow back, but in all likelihood I will always have a weakness in the jaw bone and I may have dental problems in the coming years.

Dr B said “I’ll be honest with you, there is a possibility that the chemo has already dealt with the cancer, but to have this type of cancer in the location where you have it is extremely rare and it can be difficult to treat.  I want to give you the very best chance of survival that I can and that’s why we recommend this further treatment.”

I don’t know but it felt like they both really cared and although I’m not entirely happy about having the radiotherapy I also want to give myself the best chance of surviving this cancer so I’m OK about going along for the additional treatment.   And so my journey continues but I finally feel like I am being dealt with by people who care about me and are involving me in the decision making, it’s a refreshing change from how I’ve been dealt with over the past 5 months.  I hope I don’t get referred back to the local hospital when the treatment is finished because I don’t want to come under that hospital again even if it means I have to pay to travel to the mainland to be seen there.

So that’s where I am right now, probably not going back to work until the end of May, by which time I will have had more than 6 months off!  I’m fortunate that I work for a good company and they are being very understanding and caring about me too.

I hope all is good with you all, take good care of yourselves and make sure you have fun because you have no idea what could be waiting for you just around the corner.

Don’t forget to let me know if you want to be included in a chance to win one of my Give Away packs. Good Luck!

Big love from me

AJ     🙂  xxx

 

© Janette Gregson and ajsartjournal, 2011-2015 unless otherwise stated. Unauthorized use and/or duplication of this material without express and written permission from this blog’s author and/or owner is strictly prohibited. Excerpts and links may be used, provided that full and clear credit is given to Janette Gregson and ajsartjournal with appropriate and specific direction to the original content.

 

 

 

 

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14 thoughts on “A Give-Away and an Update – the journey continues…

  1. I always read your emails as soon as they come in. You are inspiring to me. As I read your words, I feel your honesty with everything you go through. Your drawings tell so many things to me and different as the days go by. I like your color palette and symbols.
    I accept your offer of trying to win your precious gift. You are generous with sharing! Thanks 💐🌸🌷🌼🌞🌾

  2. I am so sorry to hear about all your encounters with Dr. It sounds like you have some great ones now. I am so very sorry about your health issues and will keep pushing positive thoughts out there for your complete recovery. (PS don’t go back to work too soon).
    Thank you for the giveaway offer and please please take care.

  3. Aj thank you for that! So sweet of you! Sounds like you are a really strong person. I completely agree you never know what is round the corner good or bad. I like your perspective, and yes, thanks too for your honesty. I would also love to be included in the chance to win your lovely packs! Rosy love to you xx

  4. Hey AJ what a lovely thing to do and what a fantastic things to celebrate go you hope your getting stronger everyday and life is beautiful,you have a great outlook on life.
    Please could i also enter the giveaway!
    Roll on more awesome happiness for all,
    Emmma

  5. It sounds as if you are in very capable and caring hands as your treatment progresses. My mother-in-law has been treated in Southampton Hospital (though not oncology) and had nothing but praise for the staff there. I wish you all the best with the radiotherapy.

    PS Yes I would be delighted and honoured to win one of your fab parcels. How kind of you to run a give away.

  6. Thanks for your kind comments everyone, Just so you know I’m adding my friend Sally-Ann to the draw, she recently moved to Ireland but is living in temporary accommodation while waiting to complete a house purchase, she only has intermittent access to the internet but she contacted me direct and asked to be included.

  7. Janette wishing lots and lots of love and hugs for Monday. Hope all goes well. You are one amazing lady. Thank you for sharing your journey in words and art work – it is so inspiring. All the best with the radiotherapy as you say it won’t be easy but with your strength and the love and support of all your family and friends you will get through it and it will be worth it in the end. Good luck – stay strong you lovely lady. xxxxx

  8. Sounds like you now feel very comfortable about getting the right treatment, even though it will be very tiring. But in two months it will all be over and there would seem to be no reason you wouldn’t then get the all-clear. Not long to go now! It’s great that you’ve been using this time to have a clear-out, which I always think of as mental as well as physical. Good luck with this final stage. x

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