I hope you are all doing well, here everything is fine, progress is slow but things are moving forward and in the meantime I’ve finished the Little Book of Cosmic Maps 🙂
For me doodling is a really good way to pass the time..
As you can see I’ve had a bit of time on my hands recently…
I had the PET scan last week, it was OK just a bit of a hassle, it took 2 hours to get to the hospital then I had to wait an hour before I was called in, they gave me the injection of radioactive glucose and I was left on my own for another hour before I was called in for the scan. It took about 35 minutes and then we were free to go.
I was told that I would be slightly radioactive for about 6 hours and was to avoid contact with pregnant women or children. However I was still allowed to travel home on public transport (another couple of hours). I didn’t stroke my two cats until the next day, but it didn’t seem to bother them.
Yesterday we went for another appointment with the consultant haematologist and she told me that the results of two of the three tests on my bone marrow are back and neither of them found the cancer in my bones. The final test is more vigorous and the results of that are not back yet. But so far it’s looking good.
The PET scan didn’t find any more tumours in my body (phew!) but although the tumour in my mouth has shrunk the scan found residual lesions in my jaw (I’m not sure but I think that means scaring). So although the tumour is almost gone I still have the disease in my blood but it’s in it’s early stages and there’s a good chance that with treatment I can fully recover. So the plan (worked out by this mysterious team of invisible experts) is for me to have 6 rounds of chemo and then radiotherapy on my jaw. It feels like I’ve been telling people for over a month now that I’ll be starting chemo ‘next week’ and that hasn’t happened but it now looks like it will start during the week commencing 3 November. In the meantime I have to sign the consent form and have an ECG just to make sure my heart is OK. Tomorrow I have an appointment with the nurse who is going to tell me all about what’s going to happen and on Saturday I have to visit my local doctor’s surgery to have a flu jab because they want that done before the chemo starts.
Having chemo-therapy is not something I am going into lightly and in truth I’m not looking forward to it but …. ‘needs must’ as they say, I’m just not sure what to expect.
I’ve been feeling so well for the past two weeks and enjoying not being at work but tomorrow I am going to go back to work because I reckon if I take too much time off I won’t want to go back at all! Anyway it’s pointless, and unfair on work colleagues, to have sick leave when I am not if feeling sick. Fortunately I have good employers, I’ve worked for them for a very long time and, up until now, I have a pretty good attendance record. I think they will be flexible around my hospital appointments and will be OK with me having time off if the chemo (or the cancer) makes me unwell over the next few months.
So all in all I am doing well at the moment, and I am staying positive and upbeat. I hope all is good with you where ever you are in the world.
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